Any Questions?

General

The goal is to make it possible for anyone and everyone who wants to be involved in clinical trials to do so.

Every year, more than half a million people help the NHS improve healthcare and develop life-saving treatments by taking part in clinical trials. Yet researchers often find it hard to recruit enough participants for their studies. At the same time, many people who want to take part in trials don't know where to find information about them.

No – as above, many clinical trials struggle to recruit enough participants.

The UKCTG is a collaborative project, funded by the Department of Health, and coordinated by the Department’s research arm, the National Institute for Health Research (NIHR). The Health Research Authority (HRA,) which protects and promotes the interests of patients and the public in health research, has also approved the site.

Anybody over the age of 18 years old, from all ethnic backgrounds and cultures can sign up. You can also provide details of someone for whom you care, if you would like to be contacted about trials that you can then discuss with them.

Seeing the studies

Some areas of the UK have more medical research taking place than others, and if you are willing to travel it may be easier to find a trial you can join. When registering, you can express your preferences and willingness to travel in your personal information on the form.

The status of a study can change quickly. This might be due to finding sufficient volunteers, or receiving a good response that will take time to process. Please don’t worry, you may not have missed out.

Studies are very dynamic and details can change quickly.

The UKCTG aims to use the best plain English summaries available. In time we hope this will mean that a short clear summary is available on the website; currently however it is sometimes more useful to provide a link to a summary on a different site.

It may take several months before the results of a study are available. In any study record, go to the Trial Details tab and scroll down to the bottom of the page to the ‘Results Reports’ section in order to check whether results are available. You can also go back to the initial sources, ClinicalTrials.gov or ISRCTN.com.

The studies that are listed first are the ones that are recruiting and contain your keyword(s) in the most relevant fields (such as title or condition).

Taking part in research

No, you will never have to participate in a study unless you decide it is the right thing for you. You will have various chances to make this decision by using information provided on the website and when you discuss the opportunity with the study organiser and/or your own doctor.

It is a legal requirement for research studies to have specific approval to enrol people who lack capacity. If a study has this approval, then someone acting under a Lasting Power of Attorney for Health and Welfare can volunteer a person who lacks capacity for research as long as the decision is made in accordance with the person's best interests.

Other questions

For general questions or comments, please visit the contact us page. Your suggestions about how we can improve this resource are always welcome.

No, not yet. But this could change if the demand is sufficient. Trials taking place In Wales will be included in the UKCTG and some background information may be in Welsh There are guidelines in place to ensure that participants who may have difficulties in understanding English are not disadvantaged from taking part.

The data provided by people participating in the UKCTG ‘Beta’ testing pilot will be archived by the data controller (the Department of Health) for 12 to 18 months following pilot end on Monday 18 September 2017. Archived data is retrievable by the data controller and is subject to the same data protection rules as ‘live’ information.

The archiving of this data for a period of 12 to 18 months from Monday 18 September 2017 is to allow for future review of the data by the data controller and authorised data processors and to enable feedback and dialogue with pilot participants around service developments linked to features tested by them within the pilot.